Wandering, Wondering

Yuvoice Duet: Read another inspiring story about rediscovering life with Autism here.

Imagine being lost in a large bookstore when you were little. You are surrounded by pictures, puzzles, book covers, and other unfamiliar things. It’s a strange place, where so many stories live, including magic, mystery, and science. This array was what caught your attention when your parents were only there to buy some paper. After a while, you lose sight of your parents or they lose sight of you. You think for a moment, about what to do and run around; the place seems so significant to you. After thinking for a while you give up the fight and wait by the entrance.

You weren’t afraid. Not really. The colorful and beautiful things around you were fighting for your attention. You didn’t think then — how could you? — about how long it’s been since you’d been lost and how your parents must be worried. You stood calmly by the guard, thinking about which dinosaurs you would draw when you got home.

You knew they’d find you. 

This moment meant little to me then but it was very near and dear to my mother. It was one of the earliest moments when she was astonished at what I could do and what was going on in my head. But, now, I wonder what it really is.

Then & now

Years ago, when I was young, I was diagnosed with Autism Spectrum Disorder, a condition I barely understood then. 

It is the early 2010s, and things are very different now. I’m more confident and appreciate what it means to myself and others around me. The world I see out there isn’t much clearer than the world of the bookstore. I’m still caught up in the wonder of it all with all the same questions in mind. When I first found out about my diagnosis, I felt like it was a superpower that made me special and set me apart from the crowd. I had a name for what made me better at school and different from the other kids. I had the luxury of looking at it with fondness.

(Image courtesy of Mikhail Nilov via Pexels)

But things are different now

The closer I get to the real world, the more distinct it becomes. I have been living in the Philippines with my superpower, aka Autism Spectrum Disorder (ASD), and have realized that my life was supported by a privilege that protected me from the real world. 

I grew up wealthy. My parents supported me when I acted up at school. They kept me away from the harshness meant for the little miscreant that others might have seen me as. Now, much of that wealth is gone. As I grew up and went to college, my superpower started to feel different in my hands. I met some people who were more successful and popular, and great with studies, and a few who were not. These people showed me more of the truth. I had never met anyone who revealed their struggles with bullying, society, and familial issues before, and that enlightened me to just how much my parents had protected me since I was little.

Now, I also understand how much my mother struggled to get the required care for my condition and how scarce therapy centers are. I’m a grown-up, and don’t need as much care anymore; I have an excellent social life with my classmates, and can easily make friends. But when I do need it, I hear stories repeated in various places, and all of them remind me of how hard it is to get care for ASD in general in my country.

Revisiting the bookstore

When I visited that bookstore as an adult, my mother did not mind. Why would she? Of course, she remembered the story I shared above; it was just that the present was more important. The interiors were changed. The bookstore had been remodeled; the shelves were shorter and the place was more spacious, so it was much harder for a child to get lost now. It was bigger, certainly. The colors and wonders were still there for the adults looking around. All the stories and adventures promised on those beautiful covers were still there. If I had more money, perhaps I could buy one someday. If I had more time, I could have browsed and looked at them all.

This place was the same as I remembered it, even after the changes. I walked past the guard at the entrance and into the aisles with my family to pick up some stationery. My mother knew we could finish this and make time for the trip home. I wanted to spend some more time there, but I knew I couldn’t. With our finances and changing schedules in flux, I knew better than that. I am a grown-up now and no longer have the luxury of getting lost here.

Humanity

Even the name is sacred. 

Was it worth it?

Making all those animals go extinct? 

Dinosaurs, Dodos, Rhinoceroses,

How did they ever harm you? 

Killing life instead of nourishing it, 

Cutting down trees, manufacturing cars, 

Smoke streaming from factories.
Tearing down trees, destroying the ozone layer. 

Let me just say
You’re all gathering diseases in your basket.

Will you keep up this destruction? 

Killing animals, destroying forests.

Do you ever think of the harm to our environment? 

The clouds of carbon dioxide, 

The growing dangerous greenhouse gases.

Do you even know how we depend on the Amazon? 

How it produces oxygen for us to breathe? 

How it swallows carbon dioxide? 

Forests are critical for our survival,

Producing not just oxygen, but also luscious fruits and berries. 

So please.

It depends on you.

How you want to live your life.

Do you want to breathe fresh air? 

Do you want to be healthy? 

Plant a tree, save a life,  

Don’t just kill these innocent creatures, 

The choice is yours.
Humanity.

Even the name is sacred. 

No Room For Veal

I was only six months in, working as an apprentice chef at Rocco’s, a family-run catering outfit based in the suburbs of Greater London; Esher Common to be exact. The Esher site was a multi-story production and storage outpost and the place where most of the culinary magic happened.

Mid-July; daytime

The sun was high, and the winds were still over the stony shoreline of Brighton Beach. I smelled the air and listened to the crashing waves in front of me. Peaceful, I thought, took one last drag, and stubbed out my cigarette in the overflowing ashtray.

Our staff had gathered at the client’s site, The Lock, a boxy event space in the arches under the promenade, for a planning meeting ahead of a couple of events they had on the horizon. The first was a birthday celebration in a few days, and the other was the annual Bank Holiday Ball.

Claire was already there, perched on a stool, nursing an Americano. She looked after the business side of things and was perhaps one of the best things to ever happen to Rocco’s. She had beauty and brains and was quite a likable character.

The Head Chef, Pierre, had just stepped in, an hour after the briefing was scheduled to start. His long-sleeved, crisp white dress shirt opened mid-chest and was adorned with a loose paisley print neckerchief. The cuffs were turned up, and the shirt tucked into his trousers.

“Okay, Fabien. Paolo. You have already the menu for the birthday party, yes?” Chef Pierre asked. His accent was thick as a pumpkin.

Ugh. It’s Fabian and Pablo. Nincompoop.

He waved his stubby fingers in the air, beckoning us to speak.

“Yes, Chef,” I said. “We were thinking of spinach and prosciutto stuffed veal rolls, with some greens. And a light garnish—maybe lemon—for the main?”

I said “we,” but the veal was more Pablo’s idea.

Since that Hannibal Lecter guy likened the exquisite delicacy of veal to the taste of human flesh, I was no longer a fan; period. But the prosciutto stuffed veal rolls required an inherent degree of talent, with equal portions of patience. And in that case, Pablo was your guy. He was the one with the most talent. I was just his humble sidekick. Nearly half the kitchen wished they had his skills, Chef Pierre included. But shhh; he’d never admit it.

Pablo was only twenty-four and had swapped the Brazilian sun for the rain and the chills of Britain. To better his talent, he would say. He landed at Rocco’s a month before I arrived and was considered senior to me and Ella Wolfeschlegelsteinhausenbergerdorff, the entitled one. Together, Chef Pierre dubbed us, his three Apprentis de Chefs. Fancy title, right?

“Nuh! We will not be doing that!” Chef Pierre interjected.

His face was set like the rain that was about to be kicked from the sky.

“—but Chef; the couple is from Nice and often travel to Italy with the family, for the cuisine. They haven’t been able to travel much since the pandemic. I thought it would be good to surprise them with something special,’ said Pablo.

That’s it, Pablo, sock it to him. I gave him a reassuring glance. A nod of approval soon followed.

“And for dessert — we will make sweetcorn panna cotta with fresh blueberry compote. I’ve already spoken to Claire, and there’s enough Chianti Classico in the store,” Pablo continued.

“Exactly,” Chef Pierre said. “They’re French. And we will not be making butchered young cows stuffed with anything.”

Chef Pierre raised his eyebrows. His wonky left eye glared at us with such degeneracy. He could have easily sliced us into thin strips of prosciutto if he blinked.

“But Chef—” I pleaded.

“Shut it, Fabien. Paolo, I expected better.”

Hmm, better?

“Chef!”

“Nuh. Instead, we will be making chicken cordon bleu. The other stuff is okay.”

Chef Pierre then turned to Ella what’s-her-face and thanked her for the cordon bleu suggestion. He gave her a cheeky grin and waved the rest of us off.

Of all the dishes imaginable, Chef Pierre chose chicken fucking cordon bleu? I wasn’t okay with that. No matter how you dressed it up, it was just chicken and melty cheese. Not even French. But I guess if Chef was happy with stuffing skinned chicken with blocks of cheddar and ham, then I was happy.

Truth be told, Chef Pierre lost his mojo a couple of years before that. Rumor has it that his wife left his philandering ways for her nail technician — a Thai woman, tall and fair with skin made of silk, I was told. Since then, he’s been searching for happiness at the bottom of the next bottle of Glann Ar Mor. Okay, that is French. In the end, Chief Pierre became a slothful soul and lost his powers of invention. 

I walked over to Pablo and bumped shoulders.

“Hey, don’t worry, Mon,” I said. “I’m sure you’re gonna fix it up nice.”

“I have to. I can’t afford to mess this up, not now.”

Thursday, event day

My night was fitful. I managed to pry my eyes open when the alarm sounded but stayed in bed until I was late, another one of my unshakable toxic traits.

I quickly got dressed, grabbed my kit, and boarded the Thameslink service to Brighton. Thankfully, I caught the last train for the hour. I would have made it to work in time for the briefing had my travel not been limited by the complications of modern-day commuting and earthly physics.

Chef Pierre was already in, busy chatting away with Ella, ignoring everyone else who had gathered in the center of the kitchen, awaiting his edicts, that is, directions.

“Bon. So, this is the menu,” Chef Pierre said, tossing out the stack of menu cards.

I gave the menu a quick whiz. As suspected, nothing had changed.

Chef Pierre instructed the wait staff to take their lead from Claire. The sous chefs and our group of apprentices fell directly under his supreme thumb.

“Boys. I want the mains plated and ready for me before they go out, okay?”

Boys. That was Pablo and me, if ever you were wondering.

“Yes, Chef,” Pablo replied.

We chopped, skinned, peeled, prodded, and poked for the more significant part of the day. 

It was now an hour to service, and my anxiety was ballooning. I needed a quick break, a minute or two to reset my nerves. I gave Pablo a shoulder tap.

“Hey. I’m stepping out back for a bit. Cool?”

“I got this, Man, but be quick,” Pablo said, unwrapping the stack of plates needed for the main course.

I smiled, snuck out the back, and shared a quick spliff with the dish guy. My eyes rolled back on the first pull as I meditated on my misgivings. I said a little prayer, threw some thanks to the heavens, and begged the universe to bring a swift end to the day before I gave in to the sleep that was beckoning.

Bzzt.

A timely distraction sounded from my mobile and my most trusted timepiece and companion for those dire hours in the trenches with Chef Pierre.

“Great news from the bank!” the text said, and then in another line “Let’s catch up ASAP!” I made a mental note to reply later and was about to pop the phone back into my pocket when I heard him. 

Getting high on haute cuisine — vaulted plates

“C’est quoi ça?!” Chef Pierre demanded.

His voice filled the kitchen with a thunderous roar.

“You imbecile!” Chef continued.

I ditched my share of the contraband in the bushes and hurried back to the kitchen, tripping over the door jamb that almost took out both my bony knees as I came crashing on the floor. By God’s grace, I was able to stand, but my ego was still on the floor. As soon as I recovered, I watched in awe as Chef hurled a single-plated main dish across his station.

Splat!

The plate and the dressing hit the wall first. The piping hot cordon bleu followed suit.

A few inches more to the left and the chicken would have connected with Pablo’s forehead — dished and served with all its accompaniments.

Pablo stood motionless and pale-faced.

I could tell Pablo’s heart sank as he watched his hard work reduced to a hot mess on the floor beside him. He never had to say anything; I knew precisely what was coursing through his mind.

“Oie!” I shouted as my neck veins stiffened and my face twisted into a hot mess, too.

The bass in my voice ripped through the kitchen like an unsuspected undercurrent and carried with it months of cultivating rage.

“What the rass yuh do that for? Like, what the actual fuck Pierre?!”

At this point, something colder than ice surged through my veins.

“Vous,”’ he replied. “Vous.”

“Vous what, Pierre?!”

I polished my utter defiance with a bit of Franglais and now, I had his complete attention.

“Yuh so fucking ungrateful!” I continued my rant. “Imagine, we here working on your chicken cordon-fucking-BLUE, all day. And the best you can do is fling the fucking plate at the man’s head? Pierre. Yuh never here. Late all the time. Teach us shit, yet you expect pumpkin pie?”

My fury gave voice to Pablo’s will as I stood up to Chef. For us both.

Ella covered her mouth with both hands as she tried to stifle a scream. Chef Pierre’s behavior was shocking, even by her standards. I imagined, to her, mine must have been simply appalling. But if the truth was ever like a loaded gun, this was the trigger.

I reigned in my Jamaican sass, just in time to see Claire’s face pop from behind the swing door; her mouth open like a bass.

“Get out! Get out now!” Pierre shouted. “Leave my fucking kitchen….”

“Cheups.” I pulled air through my gritted teeth, making the longest hiss imaginable.

My apron and hat were already off, on the floor, somewhere. I didn’t care where.

I almost lost the entire surface of my pupils as I rolled my eyes returning his salty looks.

The rest of the kitchen staff froze. The only noticeable sounds were the splashes of water from the overflowing sink and the few pots next to Pablo that had now started grumbling.

“You’re done, Fabien. You’re done!” His breadfruit fingers pointed to the door.

“Idiot. And it’s FABIAN.”

I was two words short of telling him to stick his job up his arse, as they say in Britain. Instead, I maintained my indignant stare and marched to where Claire stood.

The next day

Chef turned up to work shitfaced and back into his dusty old corduroys. So much for the crisp whites and that tadpole printed neck thing.

I saw that his pot belly was about to burst, so I kicked him a waste bucket. His upper body folded at the waist as he struggled to stand. He puked until the balls of his eyes exploded into pure redness, intoxicating the kitchen with the most putrid scent imaginable, spilling drips of puke onto his oversized coat that hung loosely across his back.

If you ask anyone, they will tell you it’s not uncommon for chefs to go berserk on the odd occasion when the service time was missed or  the vegetables were  not still al dente as commissioned. But no one deserved the utter disdain that Pablo endured. 

Well, there you have it — altered plates

I later learned that Pablo had altered Pierre’s plating arrangements. Knowing Pablo, he probably felt the dish looked flat and unimaginative. And as I suspected, Pablo injected a little life into the dish; some colors, height and texture to the lone chicken and the sprig of green against a dollop of that god-awful mush Pierre swore was the best thing since sweet potato chips.

The truth was that Pierre’s incompetence had become taxing, and it was no longer a secret. Why he lasted there so long, no one knew. But “everything does not have to make sense,” I heard someone say. And often, when you get that feeling, it just might be time to move on.

Pierre hauled himself to the prep table, dead in the center of the kitchen, where we all gathered again for the end-of-day briefing that should have taken place yesterday.

I stood next to my boy Pablo; my head was down, eyes fixated on the shiny surface of the table in front of me. I listened as Pierre cleared his throat and cringed at the thought of the smack that was about to escape his unbathed tongue.

“So, yesterday was okay,” Pierre said. “The couple was happy with the meal and the service. And send their regards.”

Pierre’s eyes were everywhere except where they were meant to be.

“I’ll await suggestions on the ball from vous by later today. That is all.”

He turned and then left the kitchen.

Was it shame? Guilt? Total indifference? I was confused.

It was 8 PM, and the night sky had placed a cloak of darkness over Esher Common. While the rest of the town slept, Pablo and I were busy organizing the ingredients for the upcoming ball.

“Bro. This packing thing is too much,” Pablo whined.

“I know. Plus, it’s just us two,’ I replied. “But we can do it, Mon. Let’s hurry.”

“We should be at the Notting Hill Carnival this weekend… YESSS,” Pablo remarked.

I watched in utter shame as Pablo broke into something like a dance. His body moved like an awkward robot that had lost a couple of screws in the knees and waist.

“Pablo, ah, beg! Leave the gyrating to us Caribbean folks,’ I said. “Dancing is not your thing.” We exchanged a couple of laughs and then got on with the packing.

Throughout the evening, we worked as hard as possible to prep and package the food for the Bank Holiday Ball set for Monday back in Brighton.

It was now 11:15 pm; my phone reminded me with a familiar buzz.

“Your train will be here soon,’ I told Pablo. ‘Go ahead, Man, and I’ll finish up.”

It was a trek back into the city, and the last train for the night was fast approaching.

“You sure, bro?” Pablo asked. “I already fucked up once. I can’t afford to lose this job, Man.”

“Come on, Pablo. You either leave now or catch the night bus to North London.”

The journey back to London by bus would have been long and unsavory, especially on a holiday weekend like this.

Pablo tore off his apron and stuffed it and the other bits in his bag, and he was through the door in seconds.

Moments later, BANG!

A loud thud just outside the door stole my attention. I called for Pablo, but there was no answer, so I walked over and eased the door open.

“Pablo! Pablo! Just go, Mon!” I shouted.

But the cause of the racket wasn’t Pablo; it was Pierre.

Fuck! My thoughts mouthed to form a silent shout.

What was he doing here? “His shift ended eons ago,” I thought, closing the door behind me after squeezing myself through.

Looking at his unbalanced steps, I could tell Pierre was drunk.

Pierre was wearing a gray tracksuit and a dark pair of trainers. His ears were plugged, and the hood of his shirt was up.

I watched as Pierre slid through the unlatched door and downstairs into the staff break room.

I gave a stealthy pursuit, still clutching a roll of cling film; my confused brain neglected to instruct my hand to get rid of it.

My silly hands must have pressed too hard against the swing door, and it plopped open, flooding the room with light from the passageway.

“What are you doing here?!” Pierre barked.

He yanked the earphones from his ears and gave me a cold-eye stare.

“Your shift ended 8 hours ago,” I replied with an equal measure of contempt.

Bzzt. Bzzt. Bzzt.

The ramble from my phone interrupted our stare down.

“Yea, Mon,” I said. “We’re just wrapping up now.”

It was the frozen storage guys; they were running late. I now had plenty more time.

I ran back upstairs, quickly labeled the foodstuff for the ball, and the extra meat, cleaned the counters and meat saw, and gave the floor a quick mop with a bit of vinegar.

The remaining trash, I double bagged and dumped in the food waste skip out back.

“Mate. Can you give me a lift to the station? At this hour, Uber doesn’t come to this side,” I asked the frozen storage guy as he loaded the last crate onto the truck. I figured a minicab from the train station at Esher Common to Croydon wouldn’t be too expensive.

“Sure. No worries, Man,” he replied.

I swung my backpack across my shoulders and hopped into the cabin.

Saturday and the freezer is full

It was now Saturday, and way too early to be awake.

I found myself back at The Locke, with the gang putting things in place for the ball, our client’s last hurrah for the summer. I made a cup of coffee and drowned it with some sweetened condensed milk. I took a good whiff and allowed the scent of imported instant to permeate my nostril.

I sifted through a mountain of paper Pierre had neglected to file and shook my head. Maybe this would be my new normal — I could get used to this.

Bzzt. Bzzt.

“Hello?”

“Is this Fabien?”

“NO. Fabian,” I corrected her, distancing myself from whatever French connection I had left.

“Oh, apologies, my dear. This is Ronda, calling from Brixton Bank. About your recent application?”

Yikes.

“Yes, oh, hi Ronda”

I smirked.

“Fabian. We would like to make you an offer.”

“Fantastic.”

“Can you come in next Tuesday?”

“Absolutely.”

“Great. I’ll see you at nine?”

Now, if only I could get Pierre’s big head out of the way. 

‘Fabian.’

A soft voice called out to me. It was Ella. “Claire wants to know If you guys have decided on the main for the ball?”

Shit. Did I?

“Yes,” I replied. “Veal Piccata. The veal is in the frozen storage containers in Esher. They were shipped just before the fire.” 

Spoiler Alert
Now, if only I could get Pierre’s big head out of the way — of the Piccata. His carved remains were ziplocked and tucked away in the freezer right here, yet only 80 percent frozen. If I don’t relocate it in the freezer soon, it will be rock-hard by Tuesday, too late for reaching the veal.

The weekend

Pablo was right; it was the Bank Holiday weekend. I might go to the Notting Hill Carnival after all.

Who Knew I’d follow My Family of Teachers Into the Profession I Hated!

Some people would say teaching is in my blood and that I am destined for the job. I strongly disagree with this for many reasons. 

In my family, there are many teachers. My mom is a special education teacher, and so is my grandma. One of my aunts teaches 4th grade and another takes health classes for nursing students. However, when I graduated high school in 2012, I knew that teaching as a profession was not for me. I knew, once I left high school, that I would never want to step foot in any other public school classroom ever again. At the time I graduated high school, I didn’t even want to attend college. I felt forced into the decision by my family who all flew in from out of town to attend my graduation and started handing me cash for college expenses.

People don’t realize that they have such power in the words they say and in how they choose to communicate with their peers, whether that be through kind and thoughtful words or hateful and judgmental insults. The never-ending bullying that I endured throughout my childhood in the public education system turned me away from continuing my education in college, and it was the deciding factor for not wanting to be a teacher myself.  A real shame, because I later learned I have the potential to be a straight-A student and actually enjoy learning new things. 

I go back to school

Unfortunately in 2017, at the age of 23, I was forced back into school — this time, working as a special education paraprofessional. I was a lost soul who was severely lacking purpose and direction in life. It was simply a job that paid money, and that it was all anyone cared about. 

To be a teacher, you have to have the right personality to deal with all the bureaucracy in the schools and among the staff. But you also have to have a real passion for the job to deal with the many challenging behaviors from the children; I severely lacked both qualities. Added to that, there’s the lack of proper compensation for all the hard work and effort you put into doing the job. It became evident to everyone involved that I did not want to do it. 

(Image courtesy of Mick Haupt via Unsplash)

In July 2020, I decided to go back to school, because I did not want to spend the rest of my life working jobs I hated just for a paycheck. I didn’t want to be just another number at a job who was reminded every day that I was easily replaceable. I wanted to do something meaningful with my life and be properly compensated for it.  So, I enrolled in an online degree in an elementary teaching program. Yes, teaching! 

(Image courtesy of Cole Townsend via New Old Stock)

However, it was for a very short time. Later in December of 2021, I decided to change my major after being screwed over by yet another school district.

Working in the schools was a lot like being stuck back in school — a feeling of being forced into school, just like in my childhood. 

There are also cliques of employees at every single school and district, and for someone who never fitted in properly in school, even as a child, work easily became a monumental disaster. Not only were the students at these schools now name-calling me. Yes, hurling pet names at a fully-grown adult!  The staff, and my colleagues, started calling me into meetings and pointing out everything I was doing wrong to bully and harass me. 

Many of these districts got rid of me for stupid reasons that weren’t even justifiable. The nerve. They simply didn’t like me and so chose not to invest their time in helping me become a better employee. It was a no-win situation and I eventually felt like an epic failure. 

I saw admin staff send us educators running for the hills

People are saying that there is a teacher shortage, but from what I am seeing, the shortage is of teachers. The shortfall lies in the way these districts are run and run down by staff and administrations. That is, sending many teachers running for the hills and fleeing the profession in outrage. 

As teachers, we want to be appreciated for our work and to be properly compensated for the immense effort we put into the work, especially with the rising cost of living. We want to feel safe at our place of employment and not fear for our safety every day. We also want to be rewarded for our efforts with respect, and not to be belittled and bullied by supervisors on a rampage.

The public education system is severely broken. I say that instead of trying to force change within the students, educators should first look in the mirror and ask what they can do to help create a better working environment for their employees. 

Because when employees don’t care, students can’t. The teachers burn out, they don’t love the material, they don’t love the interaction with the students, and they don’t address or maybe punish — okay, guide — students who misbehave. Isn’t that enough for you to give up the art of being a teacher?

Finding Community in Identity: Discovering My Autism in Adulthood

I’ve spent my whole life feeling like I didn’t truly fit in with anyone around me. I’ve always felt there was something “off” about me. It was as though everyone except me received a user manual for how to be human.

It took me 25 years to realize that the reason I felt different from most people is that I’m autistic. But due to my lack of education on the subject, I went that long without even knowing.

Unraveling the signs

Most of my behaviors and a large part of my personality are a result of my autism. But only late in my life did I realize there were names for how I navigated and experienced the world. 

Sensory issues

Growing up, many of the clothes I had bothered me so intensely to the point where the seams or even the type of fabric were all I could focus on all day. Sounds that were too loud to me but not to others led me to cover my ears and want to leave the room. These are only two examples of the many sensory processing issues that I’ve experienced my whole life.

(Unsplash/Majestic Lukas)

Special interests

Whenever I find something I enjoy, whether a hobby, show, book, or topic, I go all in. I want to know everything about that thing, so I spend many of my waking moments thinking about it. For months or years now, much of my life has revolved around my current special interest or hyperfixation. The intensity of my interest in a particular topic goes beyond what most people enjoy.

Shutdowns and meltdowns

I can also get overwhelmed by emotions or sensory input. As a kid, this presented as wanting to withdraw from the world, and usually speaking became difficult and energy-consuming. I still get periods like this, and they can last as long as a few hours to some days. Now I know these are called autistic shutdowns. I also experience autistic meltdowns, where I get so overstimulated or upset that I sob uncontrollably and find it difficult to calm myself down.

Social communication problems

I’ve always found it difficult to express and read people’s emotions, facial expressions, and intentions. For a long time, I called myself “socially awkward.” I often take others’ words out of context and struggle with social cues. While I’ve gotten considerably better at socializing with others, it’s still like speaking a foreign language, and the native speakers can tell it’s not my first language. 

My hardships with social skills have led to many misunderstandings and miscommunications. Since I was a toddler, keeping up with conversations and coping with social situations has been difficult.

Structure and routine needs

I thought I’d eventually grow out of my “weirdness” as I called it. But that didn’t happen. As I grew into adulthood, my problems only seemed to exacerbate. At 18 years old, I got my first job in retail. After that, I held positions in journalism and teaching. These jobs required a lot of spontaneity and lacked routine. Because of this, I struggled. I found myself hopping from one job to another to avoid what I now know are shutdowns, meltdowns, and burnout.

(Unsplash/Christ Montgomery)

A sense of belonging

In my mid-twenties, I came across autistic people’s stories and videos on my social media feeds. I related to most of what they said about their experiences with autism. After months of listening to this community and doing my research, I began to identify as autistic. It felt like I had finally found other people like me and I wasn’t alone in the world.

In late 2022, I pursued an official diagnosis. I found a local psychologist who offered autism diagnostic services. For several hours, he interviewed my mom and me about my entire life—from birth till now. Afterward, I received a six-page report that confirmed that I was, indeed, autistic.

Knowing I’m autistic has helped me realize I’m not the only one who feels this way. I now know I’m not “weird” or alone. I’m just autistic.

Since my diagnosis, I have found a community of people who understand me. I feel like I’ve discovered “my people.” I have made friends with other autistic individuals online who share similar special interests, communication styles, and ways of existing in the world. My allistic, or non-autistic, friends and family are lovely. Nonetheless, it’s been a breath of fresh air to forge relationships with people who process the world like me.

Finding community

This newfound sense of belonging has inspired me to share some tips for anyone who might be feeling different–autistic or otherwise.

  1. Don’t do it alone

Find online groups, forums, hashtags, or even in-person meetings related to a particular interest, feeling, or experience. Hearing about other peoples’ experiences and, even better, interacting in these communities can help build connections with like-minded people. This can foster relationships with dozens, hundreds, and even thousands of others with similar experiences.

  1. Keep an open mind

Be open, honest, and vulnerable. This can be challenging, especially when feeling like an outcast for certain traits, behaviors, or hobbies. But by sharing stories, you will find others with similar experiences. Speaking from experience, authenticity leads to a more profound sense of belonging.

  1. Embrace support

Get support from people who have had those experiences. Getting advice from those who have already walked that path is helpful in getting a headstart in understanding. Other people can offer valuable insight and new perspectives to help with growth and adaptation.

  1. Give yourself time

Don’t rush the journey. It can take a while to find the kinds of people with similar traits and interests. But even if it takes time, those people are still out there. Building relationships with new people can be difficult and time-consuming, but it’s worth it.

Embracing my difference

Since finding a community of like-minded people, I’ve grown a lot. I’ve forgiven myself for many of my social shortcomings and emotional outbursts that have stemmed from my autism.

I didn’t need to hold myself to such high standards anyway, but knowing that I have a disability that hinders me from navigating this world in the same ways as others has helped to understand why I feel the way I’ve felt my whole life. I no longer feel the need to meet the expectations of a society that is not optimized for autistic people.

(Pexels/Min An)

I’ve also been accommodating myself more. I bought noise-canceling headphones to help with sensory overload. I set boundaries with others when I’m not feeling like socializing. I avoid situations where I know I’ll get overstimulated. I’ve started “unmasking” my autistic traits, which means I’m not hiding them as much as I used to.

I have also found beauty in what I have realized are autistic traits. A few of these include my strong sense of social justice, intense passion for my special interests, and great attention to detail. I cherish these aspects (and more) of who I am now more than ever.

There’s nothing wrong with being different. But it’s great to know that my difference has a name and a community. I hope everyone can find their community filled with people that understand them because it’s a beautiful discovery. For me, it has brought me a sense of belonging and self-acceptance that I didn’t know was possible.

Heaven Simple

the wind did not howl
but the door frame is loose
vibrated and swayed
like the unhinged rusting tin roof
and her anxious heart
like the approach of the wind
the visitors seemed to arrive
to test the breach in the  weakness
what was giving way in her situation
their shadows eerily long
threadbare the last of her hopes
their steps determined and firm
calling her out, voices loud
out in light to accost
treasure ships of riffraff ghosts
any other day
not when she is down with decay
her nerves are far from calm
the visitors as the wind
each raindrop
ceaseless till it stops
want to prevail 
leave her unveiled
that her pillar was gone
that she knew not how strong
uprooted he was
cut down in the sweetest hour 
then she heard am yet to be gone
not until you let me fall
yes I reverberate
in each step from here now you take

From Academia to a Gompa and Back: How Retreats Brought Me Full Circle

Enmeshed in a busy year working at my academic office at my university, I thought about attending a retreat. I wanted some relief from the tiresome routine.  As a postgraduate student, I was embroiled in a substantial project of completing a research dissertation. The subject I was working on was philosophy/theology and ecology, and I enjoyed it. This was the year before the arrival of Covid-19, and there was still a bustle around the corridors and offices of the School of Humanities. 

Added to my research paper,  my academic duties included reading and grading assignments, attending lectures, and giving an occasional lecture to students enrolled in the Genre Studies unit. These were fairly light duties for any casual academic. For me, the burden of resolving the complicated subject matter of my research was most challenging. Sitting long hours working on it, I sometimes found it hard to concentrate, and I would try to find a way to clear my mind, mostly by strolling in the university gardens. 

In the garden, there were trees, lawns, and walking tracks. Refreshment corners with coffee and snacks were also available in various locations on the campus — a campus good enough to refresh and recharge oneself. But I realized these moments were not refreshing enough. I needed more than these small havens on the campus, and a fuller break from the responsibilities of my work. Perhaps it was time for a course in contemplation.

I could usually recover by retreating into my quiet office space, writing, researching, and listening to classical music. This still works well for me, but the internet remains a constant distraction. When I was offered the opportunity to go on a retreat, I decided to go for it, so I booked a spot for the mid-term break.

Most retreat centers are located in bushland — remote woods away from town and the internet — areas of complete solitude. They are close to nature and use solar power and tank water. It could be rough to keep the tablets, pads, laptops, and phones always charged.

The silence here was so exciting
My first retreat was a combination of daily meditation “sits” in the gompa  (silent sessions in the meditation hall), sleeping in a caravan, and engaging in the crack-of-dawn writing bouts lit by battery-operated lamplight.

(Photo Courtesy of Maria Orlova via Pexels)

On my first flush of morning in the retreat, the bush was quiet. I knew that soon, the birds would begin to stir in the sky.  I was writing a paper to present at a conference on theology, while also working on completing my thesis. My computer, with its e-book library, was my essential equipment, and that early morning quiet time alone was inspiring. 

Well before daylight each morning, I would walk up to the kitchen to fill a thermos with coffee. On the way, I might encounter kangaroos pausing watchfully in their paths, waiting to discover my intentions. I would practice a kind of gentle meditative walking, hoping they would not be disturbed by my presence. Soon, they would bound off, either down the valley towards the dam or into the bush, and I would continue walking, but now, I had a deepened connection with my surroundings. In the retreat center in a mountain range in northern New South Wales north of Sydney, the early spring air was crisp and clear.

The air

What a joy to have access to such clean air in the tranquil bushland!

Each morning during the break, I would sit near a small pond at the edge of a stand of gum trees, where spring wildflowers were blooming. Sometimes, the teacher would come and sit with me, and we would discuss a Zen verse or the Heart Sutra.

(Photo Courtesy of Pat Whelen via Unsplash)

Then, we would return to meditate in the gompa. Here, a statue of Buddha sat before the window on an altar with smaller statues and photos around him and lovely flowers and incense offered to him. It was a serene space at the top of a hill, surrounded by native bushland and flat sandstone rocks from which a view extended across the valley to the south. Inside the gompa, it was silent, apart from the occasional rustle when other meditators adjusted their posture. A stillness descended over the space as participants focused on their breath, beginning to release thoughts of the outside world and various day-to-day activities. 

(Photo Courtesy of Jared Rice via Unsplash)

At night, after the last meditation, the constellations of the Southern Cross and the Pointers were brilliant among the bright star fields beyond Earth. 

One thing I learned was that no matter what might appear to be going on within my fellow attendees and myself or in the memories that arose during meditation, it would always be our own personal “stuff” that would come up, simply so we could become aware of it. It was only after several uncomfortable sessions with a busy mind that I found the best way to do that. It was to alternate a sitting meditation session with one in which I walked outside or stood among the wildflowers, attending to the birds while, as earlier in the day, emptying my mind of thoughts. 

(Photo Courtesy of Adana Durso via Pexels)

Silence would sometimes pervade my awareness of those airy heights, at least for a while.

When the last day arrived, we cleaned the gompa, the kitchen, and the caravans and left the Retreat Centre around lunchtime. The next day, I returned to the university, and my mind calmed as I settled back into my office. The world seemed brighter, and my random thoughts only came occasionally and more quietly. I knew I would be able to return to academic work, but now with a peaceful mind. 

Soon, the paper was finished and ready to be presented. It was time I made some real progress in writing my dissertation. 

A Change

My mother always told me that I was her sunshine. Not only is this because my name is Summer, but also because I was the only daughter in the family and was thus treated like a princess. I was told I would do great things in life and to always follow my dreams, so I grew up having many ambitions. I wanted to be a princess like many of the other girls in preschool. In elementary school, I wanted to be a teacher and an FBI agent. When I got to middle school, I wanted to be a therapist. Finally, in my high school years, I decided I wanted to be a profiler. This decision wasn’t just influenced by the many, many TV series of cop shows like Forensic Files, Law and Order, or NCIS, but also because of my brother.

To explain what I mean, I must start from the very beginning. As a single mother, my mom was always working. She started her day at 3 am and ended it by 6 pm, taking a total of three different buses in order to take her kids to and from school at the same time. To me and my second oldest brother (Zach), our oldest brother (Josh) was like our father. My mom was too poor to afford babysitters, so that’s what Josh became.

In a way, Josh had given up his childhood for us. 

I think that’s why he changed; because of the responsibilities bestowed upon him from such an early age. Not only was he essentially a father to kids who weren’t his, it meant having to solely raise us right while Mom worked.

With all that responsibility and pressure, he constantly struggled with his mental health. Some days, I would catch him looking out of our nine-story building – which we were lucky enough to have – to a backyard beach. In those moments, time seemed to stand still. Moments like that were ever fleeting though when you are surrounded by kids who constantly bicker.

(Unsplash/Sasha Freemind)

Introductions

One day, Josh brought home a girl. Now, my brother wasn’t one to date very often, nor did he usually bring girls over. With a mom who constantly had an opinion about every little thing we did, it’s not a surprise that none of us ever brought anyone home. Although we ultimately knew it was because she was just looking out for us, it was the way she did it that bugged us. She always started with this smug look, a look that always threw everyone off.

This first girl Josh brought over was very soft-spoken, nice, and had much in common with him. I would even go so far as to say they were practically the same person. She was the type of person who just clicks perfectly at the first meeting when you’re young, and you idolize them as the coolest person ever. 

She stayed in our lives until I was about 11 years old.

There were times in their relationship when she and my brother would “take breaks,” but they would always end up back together. In hindsight, this possibly could have played a part in my own future commitment issues. Seeing those breaks made me realize the hardships of being in a serious relationship, a relationship – platonic or otherwise – that I thought I would never find myself in. 

The different faces we hide

As time went on, things began to change. 

Do you remember being younger and having everything hidden from you, whether out of necessity or compassion? More of those lies began to appear in our family from this point on, ones kept specifically from me so as not to dim my sunshine.

Looking back, I can see what a good liar my brother was; how easy it was for him to hide his millions of emotions behind the biggest smile in the world.

Don’t get me wrong, he still absolutely refused to smile in pictures. When he did, though, it would light up the entire room. When I did eventually recognize the mask he wore, it was a real eye-opener. This man, the one who raised me and who had become a saint in my eyes, had been facing his demons the whole time. 

My brother has had his fair share of this cruel world since he was just a kid, including going through my mom’s many mistakes for lovers, and his dad, who could barely get himself together for his son. 

No one is perfect, including my family and I, and living in Waianae certainly didn’t make things any better. We grew up having little money and only one income to support the four of us; That’s barely enough to live on in Hawaii.It made it easier to be drawn to things you never thought you would have the means to do. 

You’ve probably heard a lot of times that smoking cigarettes or vapes are “gateway drugs.” Well, it was that previously-mentioned sweet girl who introduced my brother to these drugs. Addiction ran in my family and in Josh’s too, and this made the difference between this girl and my brother ever more apparent; she was able to stop when she wanted to.  When she finally left for good, he refused to get clean. After all, when you have addiction problems, there is a lot you’ll do before you stop. 

The spiral of addiction 

Years went by as his addiction grew more intense until he finally couldn’t hide it from us any longer. By that point, we had moved in next door to the soon-to-be “chronics” – a fancy way of saying drug addicts in Hawaii – who only worsened it.

I couldn’t believe just how different my brother was becoming. I never imagined I would ever feel the need to leave a room or hide when he entered. Soon, I was even terrified to be home or around anyone at all. It was like watching a perfect flower blossom only to wither, just to see him deteriorate and lose his mind. 

People say home is where the heart is, a saying that was becoming less and less true for me, because home was a place I was starting to despise. For one thing, it was the place where I had to be constantly on guard because of my brother’s new and questionable friends. One time I was even woken up by one of them sneaking in through my window!

One incident that stands out

It was late one night. I had just finished showering in the girls’ bathroom in my mom’s room and was heading down the hallway towards my room. Right in the middle of that hall was the boys’ bathroom. 

Trying to be as quiet as I could – because Josh was in the boys’ bathroom – I sneaked to my room and made it safely through the hallway when I heard him finally exit the bathroom.

It was rare for my brother to ever yell at me.I was so scared of my brother’s anger that I did my best to avoid his bad side, and as a result, he completely spoiled me. I never got yelled at because I was smart enough not to push his buttons. 

But my brother was different now. He no longer had sympathy for anyone, swearing they all hated him and were constantly talking behind his back. He would sometimes even tell me he could hear voices in the walls speaking to him, voices that revealed what we would say when he was gone. 

This time was no different. Accusing me of speaking about him behind his back, he started screaming so loud that it woke my mother. She immediately rushed out of her room half-awake to see me cornered near the closet. My eyes were full of tears as I looked at her, pleading for help. She quickly swooped in to defend me.

That was my mom’s last straw. Soon after, she finally kicked Josh out, which was probably the hardest thing my mother ever had to do. She is a strong lady with her own share of trauma that made her empathy never-ending. In her eyes, no one deserved to be pushed away like that until absolutely necessary. 

My struggle to understand

For the longest time, I never really understood why my mom put up with Josh for so long or even why my brother had switched so drastically. It made me question their actions. Why only then were they unable to control themselves? 

I decided to look for an escape and turned to the shows I loved best: True Crime TV. I came upon this one show called N.C.I.S., a show that constantly relied on a profiler. A lot of shows I watched had profilers on them, but it wasn’t until I realized that I wanted to understand people better that I really started to notice them. In N.C.I.S., the profiler could read people like the back of her hand. 

You’re probably thinking that shows like that aren’t completely accurate and, trust me, I know. But it was the fact that she understood everything that really caught my attention. It was a way for me to finally understand my brother’s reasons as to why he turned to drugs, and the reason my mom had so much empathy for people who deserved so much less. If it had not been for my brother and mother showing me such a change and putting me through those experiences, I probably would have been an entirely different person. A teacher, perhaps, or maybe even a princess.

(Unsplash/Marija Zaric)

I Have Killed a Dozen Butterflies

I have killed a dozen butterflies…
Had their powder dust my fingers
As I grasped my hand tighter and tighter
Afraid to let them fly away

They were my conquests
Such delicate, almost ethereal things
I watched them fly,
Hoping someday I can too

I have killed a dozen butterflies…
Afraid to let their beauty fade away
I wasn’t content with just looking
I wanted assurance that they would stay

I have killed a dozen butterflies…
Even though I didn’t want to
That wasn’t my goal
But as I flit from one extreme to another
Their wings were losing their dust
My desire to protect them from the world 
Cut off their scales
Destroyed their wings
Made them die a slow death

I killed those butterflies…
I’m sorry
But I wanted to be in control
And this was the only way I knew how

In Experience: Reflections of a Settler

It’s all in the reflections. This account is one of my fondly revisited ones, a space for self-discovery and conscience.

Aah, I’m exhausted! It was half past two on a Delhi late August summer afternoon in 2021 when I was attending one of my tutorial classes at my college. These sessions were calming ones where we would think about life and sort of relax through such reflections. In the hustle and bustle of assignments and deadlines, I sometimes lost the excitement of these sessions as a result.

So, this circle of informal questions quickly shifted to me, and I, at that moment, was completely baffled by the line of questioning. Seeing this, the teacher asked, “What’s the most striking difference between your place and here?” 

Without even thinking, I quickly answered, “Infrastructure and maybe nothing else.” It might have been the most absurd answer she’d ever heard, but it was thankfully enough as the class dispersed, and I was left with a question. 

It was probably regret that crawled up on me, so much that I could hardly think of anything else beyond that question whenever I would travel through my place and Delhi. Like a sense of being lost in observation. Being someone who always loved to observe the uncanniness in their surroundings, it made me more aware of the circumstances, the nuances of communication, gestures and the degree of proximity. 

Okay, so let me quickly peel away the layers of silence and say it out loud that there indeed is an array of differences in the regions. To begin with, Assam, the eastern state, is a rainbow of warm-hearted people belonging to distinctive ethnicities; some of them have inhabited these lands and some have flocked in during the past two centuries. Now, they are coming to Delhi, the land that kindled hopes in millions of aspirants to finally hit a milestone in their career. It’s also ethnically diverse and inhabited by the majority of these aspiring populations. 

How can I not express the most striking reason for my discontent, which is that the food of the Eastern States, this palace of rice, undoubtedly has my heart? Well, Delhi has its own variance in serving comfort foods, but what made me kinda sick within the two months of my initial stay in Delhi was the resilient roti culture. Still, I countered it over time and developed a fondness for some traditional North Indian dishes like “kadhi chawal” and the very tender thin “rumali roti.”

On the streets, I see an abundance of greenery and, hiding in it, stories of penance and sometimes grief. This landscape sustains tales of livelihoods where every day is a struggle to make ends meet. Still, the lands do not align with the competition to tread upon the lives of one another. It is implicitly integrated into the idea of being that, in every way, there is a placid display of diversity. 

The settlers of my eastern homeland preserve a simple but magnificent culture where one can find fresh vegetable markets and brightly blue skies. One that caters for its people in “kaah” (the bell metal used to make utensils), “muga” (muga silk), and that greets one with the “gamusa,” (a woven scarf with distinct embroidery patterns.). Enchanting wall carvings and fantastically lit elaborate markets make Delhi in itself the most vibrant capital of the world to experience life and people in. The street corners are animated with students and doorways to the metro are full of hawkers and a brigade of auto drivers who are ready to even take one “to the moon.”

It is only in the humanities and liberal arts that we capitalise on the idea of learning and thinking, cultivating skills for empathetic understanding. It is in exploring these phases of my journey that I started considering things that are seldom asked. But as I should say, they do hold relevance as they become significant throughout the experiences, and give more context to someone’s story.

All in all, it was a contrasting vision that was important to help me touch the nodes of reality, somewhere where there was not only a beginning but also closure. Feeling at home, reclining to all the familiar essence of it, needs imagination. And this is one that has now become very intricately intertwined with the idea of both places. Maybe the shared idea of belongingness rents this “liking” space in my heart. Now, even though I have no permanent residence to establish here, I trust that the familiarity of the region keeps home in a close embrace.

Now that my experiences have handed me a platter full of unique exposures, I regard this as an invaluable archive of memories. These memories will stay and colour new horizons of thought and provide me with a deeper contrasting tapestry of insights. In retrospect, to my response, our professor, I would say, “Ah how embarrassing!”